Talking openly about cancer with your family, especially if your family has a history of cancer can be life-saving. Below are numerous links to organizations that provide a wealth of information about BRCA related and other hereditary cancers. Be sure to share these resources with anybody and everybody you know who has a family history of cancer. Nobody should die of a preventable cancer. Nobody!
Sharing Medical Information with Relatives
If possible, the following family medical information should be collected and shared with close relatives:
-- family members who were diagnosed with cancer
-- age at diagnosis
-- type of cancer, including pathology results, if available
-- genetic test results
to Your Family About Your BRCA1 or BRCA2 Mutation
Learn how to share test results, letters from your doctor or genetic counselor, or other information you received about your mutation with your family. Giving family members information about your specific genetic mutation helps their healthcare providers know exactly which test to use.
How to Share Genetic Test Results With Family
When you share genetic test results about hereditary cancers, your family members need to know at least these 2 important details to share with their health care providers or genetic counselors:
-- The name of the specific gene where the mutation was found, like BRCA2
-- The specific mutation in the gene, like 187delAG in BRCA1
in the Family: The Importance of Talking About Hereditary Cancer
The key is communicating information with not just your daughter or son, but also extended family such as an aunt, uncle, niece, nephew or grandchild, according to Megan Myers, M.S., a genetic counselor from the University of California San Francisco (UCSF).
Encouraging Family Conversations About Hereditary Breast and Ovarian Cancer - YouTube Video Project
|Hereditary Cancer Syndrome Video|
Breast and Ovarian Cancer Syndrome
Hereditary breast and ovarian cancer syndrome is an inherited cancer-predisposition syndrome. Affected individuals have a significantly greater risk of developing certain cancers, particularly breast cancer, in both men and women, and ovarian cancer in women. Many affected individuals tend to develop cancer earlier in life as well, usually before the age of 50.
Bright Pink's mission is to accelerate, deepen, and expand the impact of life-saving breast and ovarian health interventions.
Helping families by providing free education, support and help finding early detection and genetics services.
To alleviate the emotional and financial burdens of women facing breast and/or ovarian cancer (regardless of genetic predisposition) through advocacy, direct assistance, empowerment and events.